Margret, Thank you for your response. The myoclonus-dystonia I have is inherited movement disorder with myoclonic jerks with dystonic movements. This is my second attempt with DBS. I also had a thalamotomy in 1997 which worked for three months before all movements returned. This Website gives me morral support and also I can give back some feedback. Some days it very frustrating Thank you! Lee
Subject
Re: MYOCLONUS-DYSTONIA
Date
13 November 2003
Posted by
Margaret
Hi Lee,
Although I am sure you have done a seach on DBS and myoclonus dystonia, I found the contents of the website very informative. It has the 2002 Symposium Report reproduced and other articles as well. If you use googles.com as your search engine, you will find other sources of info as well.
I enjoy your posts, whether the subject matter is an up-date on your condition or helpful advice to another posting. And, of course Roberta's comments are often brilliantly humorous and always helpful.
Cheers,
Margaret
Subject
MYOCLONUS-DYSTONIA
Date
12 November 2003
Posted by
LEE BUCKINDALE
HAS ANY BODY OUT THERE EVER HEARD OF OR HAVE GENETIC MYOCLONUS-DYSTONIA? IT IS A VERY DIFFICUT DISORDER TO TREAT WITH DBS
